The Swedish National Down Syndrome Association was established in 2002 by a group of parents and professionals who recognized the need for an association whose focus would be specifically on children, youths and adults with Down syndrome and their families. The association is a non-profit organization and most of the work is made on a volunteer basis. 

In average 153 babies are born with Down syndrome in Sweden annually, and the number of persons with Down syndrome living in Sweden is estimated to 5 000 – 10 000. The Swedish National Down Syndrome Association works mainly with support for new parents, local networking, seminars for families and professionals, information to the media as well as with summer camps for families with babies (0-2 years) and adults.

Within the association there are project groups working with specific areas such as
pre-natal testing, pre-schooling and schooling issues, the association’s website and communication on social media and international exchange mainly with edsa (European Downs Syndrom Association) and DSi (Downs syndrom International).

DSi have member organisation all over the world. Information about Downs syndrome in native languages can be found at these organisations websites.

The Swedish National Down Syndrome Association has several members whose native language is English. You are welcome to contact us at