Ta del av Science & Society-sessionen online från T21RS 4:e internationella konferens, lördagen den 11 juni kl 17:30 – 21:00 svensk tid.
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Program:
17:30-17:35 Introduction
Anne-Sophie Rebillat and María Carmona-Iragui, co-chairs S&S Committee T21RS
17:35-17:40 Opening
Theresa Mabie
17:40- 18:10 Presentations
DS and Covid-19, including psychosocial impact
Dr. Sujay Ghosh, University of Calcutta, India
Therapeutics: IVIG treatment for regression
Dr. Jonathan Santoro, Childrens Hospital Los Angeles, USA
18:10- 19:00 Panel discussion on research participation: Why families’ participation in Down syndrome research is key and how you can get involved
On the importance of research participation
Hampus Hillerstrom, President & CEO, LuMind IDSC
Introduction of the clinical trial networks
Hampus Hillerstrom, President & CEO, LuMind IDSC
Dr. Andre Strydom, King’s College, London, UK
Dr. Michael Rafii, University Southern California, USA
Importance of Brain Biobank and how it works
Dr. Lotta Granholm, University of Colorado, USA
EBRA T21 cluster (European Brain Research Area)
Dr. Mara Dierssen, Centre for Genomic Regulation- CRG, Barcelona, Spain
Dr. Marie-Claude Potier, Institut du Cerveau – Paris Brain Institute, France
Testimonials from research participants in Europe and the USA
Coordinated by Dr. Isabel Barroeta, Hospital Sant Pau, Barcelona, Spain
Panel discussion with all the speakers
Moderated by Hampus Hillerstrom and Isabel Barroeta
19:00-19:30 Break
19:30-20:00 Presentations
Physical activity and impact of exercise on cognition
Dr. Sarah Pape, King’s College, London, UK
Innovative treatments for sleep apnea disease. Presentation of DSC2U
Dr. Brian Skotko, Massachusetts General Hospital
20:00-20:30 Hollywood panel
Moderated by Eric Rubenstein. Guests:
Cole Sibus, actor, Los Anteles, CA, USA.
Blair Williamson, actor, Los Angeles, CA, USA.
Gail Williamson, talent agent, Los Angeles, CA, USA.
20:30-20:40 Cultural program: Music show
Sujeet Desai, Musician & Motivational speaker, Williamsville, NY, USA
20:40-20:55 Video with highlights of the conference
20:55-21:00 Closing
Anne-Sophie Rebillat and María Carmona-Iragui, co-chairs S&S Committee T21RS
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