The Swedish National Down Syndrome Association was established in 2002 by a group of parents and professionals who recognized the need for an association whose focus would be specifically on children, youths and adults with Down syndrome and their families. The association is a non-profit organization and most of the work done by the association is done on a volunteer basis.
It is estimated that ca 130 babies are born each year with Down syndrome and approximately 5000 people in Sweden are diagnosed with Down syndrome. The Swedish National Down Syndrome Association works mainly with support for new parents, local network building, seminars for families and professionals, information to the media as well as with summer camps and weekend camps focusing on the use of signing as a bridge to speech.
Within the association there are project groups who work with specific areas such as pre-natal testing, pre-schooling and schooling issues, the association’s website and monthly newsletter and international exchange.
The Swedish National Down Syndrome Association has several members whose native language is English. You are welcome to contact us at firstname.lastname@example.org